Monday, March 14, 2011

Wii, Wii, Wii all the way home

It's been almost a month since the surprise Bug gave me.
It was a Sunday and Bug's weekend care-giver was working, but Bug called to invite me over. When I arrived he was waiting outside all giddy with excitement. He was wiggling around on his seat. His eyes were alive with mischief and he couldn't wait to get both of us inside.
He directed me to his bedroom... I know, this was mighty familiar to the first time we met.
I sat on his bed and he was more agitated with excitement.
'Open the drawer in my dresser.'
I opened a drawer and it was empty, he said the one above it. Even before I got it opened it felt heavy. There was a brightly decorated gift bag lying on it's side in the drawer.
'Bug... what did you do?'
Bug laughed, his body was tense with anticipation. I lift the bag from the drawer and pulled the tissue paper away to reveal a new Wii.
I'd been humming and hawing for months about getting myself a Wii. My son saved his Christmas money and bought himself a black Wii. I'd seen these funky red ones in the store and thought they looked cool.
'I tried to get you a red one but they were all out,' Bug said.
I held the cardboard box and looked at the my new black Wii.
'I wanted to get you Donkey Kong Country, but I didn't have enough money. I saved up for it.'
I told Bug that this was perfect. We could go shopping, get the game and I'd also get another controller. I'd seen pink ones and thought they were perfectly gay.
I've been enjoying my new toy. I did get Donkey Kong Country Returns and it's been a blast. I actually still have my Super Nintendo (SNES) from the mid-nineties and I have Donkey Kong Country for that system. Before Christmas I pulled out the old SNES and worked my way through the levels of the old game. It was mindless fun. My son and I played the old game and laughed at how crude the graphics looked compared to the amazing imagery on the new Wii game.
Bug's been watchinh me conquer the DK levels. It was fun to hang out with him and both of us were engaged in the game. Bug said he couldn't wait until I got the New Super Mario Brothers for Wii. He liked watching Super Mario when he was a kid.
Last week the both of us were out and about. We had lunch in the food fair at the mall and then stopped into the video game store. I saw the new Mario game and bought it. I also got another controller, this time a blue one! I tried my hand at the Mario game, but even when I was younger I wasn't very good at it. But, I'm sure with lots of practice I'll get more competent.
But, for now my calloused thumbs are healing from too many hours of directing Donkey Kong and is buddy Didi through the amazingly fun, yet difficult levels of the DK Wii world.
Thanks Bug!

Until the next time...

Sunday, March 13, 2011

Notes from the past

A couple evenings ago Bug and I were at his parents home for dinner. After the plates were cleared away, stacked in the kitchen to be dealt with later, we all settled in the living-room. Bug's Mom brought out a leather bound copy of A Tale of Two Cities. When she opened the cover, inside were two little compartments that held little treasures from here sons' youths.
There were baseball cards where Bug's brothers were posed with a baseball bat held over their shoulders. These laminated cardboard rectangles documented the maturing of Bug's brothers through the years.
But the real treasure were two notes written by Bug's middle brother. They are both brief and showed two different aspects of Bug's brothers relationship to him and his disability.
The first one is a note of concern and possible warning.
"Mom, me and (Bug) are not Dead we are at 7-11 for a fue minits."
This note implies that Bug and his brother wanted to dash off to the store to probably procure some treat. I imagine that it's summer, hot, and they've gone to get something to cool them down; a slurpee, Popsicle or some ice cream treat. What I love about this note is that the middle brother would have had to care for his older brother and possibly push Bug in his wheelchair. I also love to think that this must have normal for the family.
The next note may have been written later, by the same brother and it shows dissent amongst the ranks.
"(Bug) is never told to do anything, so he will never have a chance to screw up. Just because He's in a wheelchair."
This is my favorite of the two messages from the past. Bug's brother told me last night at a family dinner that he was around eight to ten years old when he wrote it.
I imagine these two pre-teen boys defiantly, yet possibly a bit sheepishly, standing up for the injustice of getting in trouble for 'screwing up' and their older brother was totally off the hook for any possible punishment.
Bug has told me that his brothers thought it unfair that he didn't have to do chores around the house. They didn't see the wheelchair as an obstacle and tried to use it to their advantage. One time they ducted-taped the vacuum to Bug's hand and pushed him around the living-room.
Bug has shared with me that for the most part during his youth he thought that it was OK he was in the wheelchair. His Mom made every effort to get Bug involved in the community. Bug was in Cub Scouts, Sea cadets for a short while, played bocce ball and when he was really little Bug was the poster child for the Kinsmen Mother's March with local celebrity Jackson Davies. Bug had a full, busy life.
But... he tells me that when his middle brother got his driver's license everything shifted. Bug saw the freedom the license gave his brother and he knew that he wouldn't be able to get one. This was the first blaring time when Bug saw the limitations of his disability.
Hearing this story saddened me and helped me to understand Bug a little bit more. Noboby wants to be left behind, especially someone so full of life as Bug is.

Until the next time...

Saturday, March 12, 2011

Kiddin' around

Bug and I like to kid around, a lot.
Often we'll take turns acting like our feelings hurt and pretend to pout. All for a laugh. Lots of times Bug will say 'I'm going to my room.' and wheel off in a dramatic huff. I hear him chuckling to himself when he gets to his destination. Or if he wants to be really dramatic he'll say 'I'm leaving!',open the door and take off outside, socked feet, no jacket, gone.... for a few seconds; long enough for the door to close on its self.
Sometimes he'll tell the toys on a shelf in his bedroom to 'Attack!'. He's commanding them to attack me as I probably pulled some joke on him.
We often feign dramatics at the most mundane thing. Bug will say he has to go to the bathroom and I'll reply with a huge sigh, 'Again!'.
This joking got us in an awkward situation once.
Bug and I were on Commercial Drive waiting for a couple friends to come out of Sweet Cherubim. Bug and I were on the other side of street and I got to joking with him. I may have been rubbing his ear and giving it a gentle pinch, which I do regularly. Bug was squirming in his wheelchair and may have said 'Stop it' or something like that. He was visibly trying to move his ear away from my fingers.
Right away this guy came up to us. He was scruffy looking, big in stature and with a big presence. He lumbered right up to Bug, 'Are you OK?'
I said, 'We're fine...'
This guy cut me off and said, 'I'm talking to him.' He bent over and asked Bug if everything was alright. If I was harassing him.
Bug was startled and caught off guard which makes it difficult to speak right away. He nodded his head and I think he was able to say ,'Yeah.'
The guy wanted to make sure and reiterated his question.
When the guy straightened upright he eyed me. Making sure I didn't have some power/control over Bug.
I told the guy that we often joke around.
The guy gave Bug another look and feeling sufficiently convinced he went on his way.
Bug and I gave each other a look like, 'what in the hell was that?'
We often talk about that moment and I was really impressed that this guy took time to come over and make sure that Bug was not being assaulted or abused in some way.
Bug likes it that we joke. He is most uncomfortable with people when they are all tight and polite with him. He likes it when people feel confident and know him enough to say silly or even rude things to him. He loves it.
He often laments that all his care-givers joke with him. He pretends like this is some travesty, but deep down he loves that we, the care-givers, past and present, respect him as a person and can see his intelligence.
Bug has a wickedly, dry sense of humour and some people are pleasantly caught off guard when he feels comfortable enough to show them his wit.
Bug makes laugh!

Until the next time...

Friday, March 11, 2011

Bug loves chocolate

Bug and I went for a walk in the drizzle to Safeway. We needed a couple things and Bug wanted to get out of the house for a bit. We usually don't walk in any kind of rain, but I put a towel over Bug's lap to protect his sweat pants and we were off.
On our way home Bug said he wasn't going to eat chocolate any more.
Ha.
I laughed.
Bug loves, loves, LOVES his chocolate. There is almost always some kind of chocolate treat in the house. On our Valentine's trip to Seattle Bug and I came across these dark chocolate covered raisins put out by Nestle. Oh they are good! Unfortunately they're only available in the US.
Bug isn't really a picky eater, but I did try and get him onto some healthier choices, like whole wheat bread. Bug loves his white bread. I was hoping to shift him to whole wheat and we did for a couple months, then Bug had me stop buying bread all together. Bug liked having a half slice of toast with peanut butter at bed time that he'd eat with his bedtime anti-nauseate pill. Now he has half an apple or a banana, no more bread.
I bought whole wheat crackers once. That was a mistake. I didn't tell him and I kind of acted like I'd made a mistake. He saw right through me and wasn't going to eat another one. I gave the box of leftover crackers to a friend and Bug was back onto his white salty topped crackers. Bug happened upon graham crackers quite by accident. We were at a friend's place and I had forgotten our little plastic container of saltines at home. All our friend had were graham crackers. Bug's eyes lit up when he tried one. He really liked them. They've become a staple item in Bug's pantry.
Bug hates olives. I bought yummy olive buns when we were first dating, thinking what a treat! He said, 'what a yuck!'
All our friends know about Bug's aversion to olives and tease him about it whenever they get a chance.
Bug has his set selection of cereals he likes: Froot Loops, Corn Pops and Cheerios (plain or honey nut). There's one type we sometimes buy when we go to the States as it isn't available in Canada; Cookie Crisp. He doesn't like Mini-Wheats.
Another thing we buy in the States because they're so much cheaper are Cliff Bars. These are a great thing to leave out on Bug's snack plate along with the Bar-B-Q or Salt & Vinegar chips. He's tried a few different flavours of Cliff Bars, but it's now narrowed down to Peanut Butter Crunch and Chocolate Chip Peanut Crunch. We buy then in bulk when we go to Trader Joe's in Bellingham.
Bug loves when I make salmon for dinner and really enjoys a stir-fry (with white rice). Before I met Bug his weekend caregiver got him turned onto perogies. That's one of Bug's favorite lunches, half a dozen perogies and a couple slices of fried baloney.
But his statement about no more chocolate...?
I'll believe it when I see it.
There's no way he'd ever give up the seduction of chocolate.

Until the next time...

Thursday, March 10, 2011

Bug likes skulls


Bug likes skulls.
He doesn't know why, he just does.
When we were in Mexico Bug and I joined some of his family members for a bus trip to Chitzen Itza. This is the site of some amazing Mayan ruins. It's also the site of tons and tons of vendors. table after table after table of stuff for tourists to buy. Several vendors had these elaborately painted ceramic skulls. Bug wanted one. Each time we passed a table of these skulls Bug wanted me to slow down so he could look at them. Finally Bug settled on a white skull with black markings.
Sometimes Bug joins me when I go fabric shopping. He keeps his eyes peeled for any fun skull fabric. I've made him a place-mat and napkins from a couple different skull fabrics he's chosen
Also Bug's collection of pajamas has suspiciously taken on a skull theme. For Christmas his Mom bought him a pair of skull pj bottoms and our friend Pansy surprised Bug with skull bottoms and an iron-on skull patch.
Value Village has yielded some skull treasures. Looking through the racks of shirts, I came across a comfortable looking top with skulls and roses inked into the material. Another time I found a heavy cotton scarf with a funky skull pattern. I wasn't sure what we'd use it for, but I bought it anyway. Bug, of course, loved it and suggested I could cover this block of wood that's used to elevate his snack plate. I stapled the cloth to the chunk of wood and voila! it now a funky block of wood.
One of Bug's favorite Halloween decorations is this weird alien-like baby skeleton. The thing has this over sized skull head and little skeleton body. Bug loves his alien-skeleton-baby. We hang it by the front door, so it can great all guests.
Whenever I'm out and about I keep my eyes open for anything skulls that Bug might like. Recently I was in Michaels craft store wandering about, waiting for an appointment. I walked down an aisle and found these fun little skull pushpins in black and pink. Very fun. They now live on the cork-board by Bug's bed to secure the pictures of shirtless men from last year's calendar.
Yes, my Bug likes skulls and he doesn't really know why.

Until the next time.

Saturday, March 5, 2011

A bit busted up

It’s been a rough couple of weeks for me lately. Writing these pieces have been a lovely distraction from my internal crap, but I feel I need to write about what’s been going on. The purpose of these writings have been to explore my relationship with a man with cerebral palsy. I’ve focused a lot on Bug and his life, but I’ve avoided/neglected to write about me, the writer. This hasn’t been intentional, just that I feel Bug is so fascinating and amazing and it’s easy for me to focus on him, but - there are two people in this relationship.

I’m the eldest of three boys, just like Bug. I’m the only queer one in my immediate biological family and as far as I have found out, against all odds, the only fag in the whole family on both my Mom and Dad’s sides.

What’s with that?! I somehow inherited this rouge gene that skipped every other fetus developing in all the women in my family. Crazy! .... and somewhat lonely. I’ve often fantasized that a gay cousin would contact me. I had one female cousin that I adored and we met when I was ten. We would play and play and play for hours. I loved my cousin and thought we would marry. Later I hoped she was gay too and we would have that in common, but she happily married a farmer from Saskatchewan and wrote to me about finding the power and love of the Lord Jesus Christ. Yeah, not so queer.

Later I wondered if I’d get an e-mail, letter or phone call from my nephew or nieces questioning their blossoming sexuality. Nope, all three seem to be happily exploring their heterosexuality. Thus leaving their gay uncle as the only queer in the village.

I hinted in an earlier writing that I used my twenties to work out a lot of my proverbial shit and, WOW, what a pile I had accumulated in a few short years on this planet.

First, right off the bat, I almost died at birth, just like Bug; we both flirted with death right out the gate. Very soon after I was born, the doctors realized something was wrong, they thought it was my heart. I was taken away from my nineteen year old mother, whisk in an ambulance to a larger city an hour away and my chest was opened to find out what was wrong with me...

...what was wrong with me... I don’t know how many times I said that to myself over the years.

As it turned out my intestines weren’t joined in one place and the surgeon put me back together again. I was left with a lifelong ‘+’ sign on my belly.

The second obstacle I was confronted with was that I was born into a farming family.

Me!

Thirdly I was (and still am) ultra-sensitive. My empathy for animals crippled me at times. There were many moments where I'd run for the sanctity of my bedroom, snot dripping from my nose, in full hysterics at some atrocity I'd witnessed in the confines of the wooden fences of the barnyard. Little slimy calves born dead, their pink tongues hanging limply from their mouths and the mothers cleaning the afterbirth from their lifeless offspring. Going out to play in the hayloft and finding the bloated body of a grown animal lying on its side, legs sticking straight out. The horrific smell of burning hair and hide during branding day and the endless cries of baby calves that needed to be separated from their mothers so that the cows udders could dry up so they could be ready for breeding again.

It was all the cycle of life and death on the farm. I used these stories and images to create a one person show I performed after graduating from theatre school. It was very cathartic to sort through all my memories, piece them together in a cohesive form and then play it out in front of audiences.

That’s one of my skills. Turning lemons into lemonade...

The other piece of my childhood that I had to work through in my twenties was the fact that I was sexually defiled the summer of my twelfth year. While Bug was forming in his mother’s womb, all cozy in those embryonic fluids, I was being molested by an ex-minister of my community. It took place over an eight week period, mostly on camping trips that he and I took together. I’ve done a lot of therapy around the impact this and being raised on a farm had on my sensitive little soul. Being defiled by a man when ultimately I would grow into a gay man has played many weird games on my sexual development. It’s been over twenty-two years since that summer and there’s still fall-out from then. I’ve described it as being a part of my bone-marrow, much like being queer is a part of my makeup. I used to tie the two in together. In my twisted young mind I attributed my sexuality to my abuse. Thank goodness therapy sorted these into two separate aspects; the abuse happened to me, my sexuality is me.

The ways in which I explored my sexuality has been tainted by my defilement. I thought I was only desired for my sex. Even today I still get a pang of shame whenever someone expresses interest in me. There’s this quiet little voice in my head that says, ‘He only wants you for sex.’ I constantly am in some form of quiet battle with my perception of me and what I think others see in me. Which brings me to now.

I haven’t felt very sexual lately. It’s been quite awhile and Bug is so patient with me. I do my best to bring him pleasure as his sex drive is much higher than mine. I love the fact that I can bring pleasure to Bug and his body by my touch. Also Bug isn’t shy about asking for what he wants. He has a beautiful way of gently asking me if I’d ‘help him out’. I don’t want to deny him touch, but a lot of the time I feel like an ugly monster lying down beside him and I have to combat myself to stay present to bring him pleasure.

This is one of the reasons I’ve had a crappy couple weeks. A psychic fatigue overcomes me when I realize that broken sensitive farm boy, who didn’t want to be a farm boy, is still very much alive in.

...all the King’s Horses and all the King’s men helping to put me back together again.

Until the next time...

Thursday, March 3, 2011

Unwanted Chuckles

Bug and I laugh a lot.
It's refreshing for me to have so much laughter in my days. Bug loves to laugh at TV shows and often asks me if I'll sit with him during a half hour comedy show. He says it's funnier when there's someone else there. I love watching him laugh. When he really gets into it, his whole body laughs.
Many times, however, Bug laughs when he doesn't want to. His reflex is to laugh in uncomfortable situations or during sensitive conversations .
Oh!
He gets so frustrated with himself when this happens.
It's like that scene in the old Mary Tyler Moore Show from an episode voted as TV Guides' #1 funniest. It's the one where Mary is at Chuckle's the Clown funeral and she gets a fit of the giggles. Finally when the parishioner overseeing the ceremony gives her permission to laugh, she bursts into tears.
Bug doesn't cry when he gets his reflexive laughter, but he sure can get annoyed with himself.
Bug spoke to his doctor about this at a visit some time ago. He was hoping the doctor could help out with a pill or something. Unfortunately the doctor said it was a part of his nature and he would have to cope with it. He did suggest that Bug take deep breathes when he feels it coming on, but it honestly doesn't make much of a difference.
I try to be patient with Bug when this happens and often his laughter can diffuse a potentially tense of difficult situation. Many times I join in with his laughing and we both have a joyous chortle together. Often it shifts my mood to a more relaxed one and whatever was bothering me doesn't seem so pressing.
But, other times it can be frustrating, especially if I start talking about something meaningful or sensitive. It can kill a conversation when the one I'm speaking to begins to laugh. Bug's face turns red as he tries desperately to stifle a laugh and he gets pretty disappointed with himself.
This uncontrollable laughter has cropped a few times when we're having... uh... intimate moments in the bedroom. Often at these time we can turn Bug's laughter into a joke and continue with our intimacy, but there has been the odd time that it's killed the mood. This can make Bug really mad at himself.
We're learning to live with it more and more. I'm learning to drop a conversation or at least not have as much emotion invested in it. Bug works his darnedest to keep the laughter at bay.
A lot of the time we both let the laughter flow and enjoy the sensations it brings to our bodies.
Bug is an amazing guy and his humor is one of the many facets he brings to out relationship.

Until the next time...